Amped!

I have been on Ampyra for 2 months now.  This medication is really making a difference. 

I saw Dr. Kita last month and I did the same walking and coordination tests that I did back in April.  I knew the medicine had, at the very least, improved my energy levels.  When I was seated in the exam room to wait for the doctor, I was surprised at the memories that came to me from that day back in April.  In April, I walked in on weaker legs.  At that time, putting one foot in front of the other seemed like a skill that I might be in danger of losing.  The walking test was just a simple timing of my pace up and down the hallway.  The coordination test required placing pegs into holes and then removing them.  As I considered how I felt that day in April, and compared it to this day, I realized how much difference the Ampyra had made in such a short time.  I had only been on the medication for one month.  Having MS, you just don’t expect a medicine to make such an impact.  You get used to the idea that your body may fail you at some point.  In that short stretch of the walking test, I improved my time by 2 seconds (and it is a short hallway)!  I had not even known that my hand-eye coordination had been affected in April, but the time for that test improved as well.

The other thing I want to tell you, if you do try, or recommend this drug to anyone is about the side effects.   The first month, I did experience headaches and insomnia.  Getting the timing down for taking this medication twice a day helped with the insomnia.  I take the doses 11-12 hours apart, and I always take the first dose right when I wake up.  If I miss that evening dose by more than an hour, I skip it.  Sleep is important.   Also, the increased energy that I now have has gotten me up and moving more, which helps me actually be physically tired each day.  So now, I am getting even better sleep.  The headaches also went away after that first month.  Maybe they were caused by that lack of sleep!

Those first few weeks, I could swear that I felt the Ampyra coursing through my body.  I do have a vivid imagination, but I also felt physically “amped.”  That actually is what the medicine does,  it speeds up those neuron transmissions; I think I could actually feel that working.  I am Amped!  Not only physically, but in my spirit as well.

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4 Comments

  1. Billie Jo Robbins said,

    July 30, 2010 at 4:58 pm

    Praise God for answered prayers!..and more energy…and better coordination!..To bad that it has the side effects, but am glad those eased up for you…Going to my doctor next Friday to see about meds for my Fibro…you have given me hope that they can find something that can work..am very happy for you Annita!

  2. Gina said,

    July 30, 2010 at 8:16 pm

    I’m excited for you! However, is the coordination thing “really” the MS? (just kidding!!!). I’m glad it’s working, and when I see you in October, I’ll plan some roller derby activities or something, to burn off your extra energy!!! Love you, Sweetie!

    • annita said,

      July 31, 2010 at 11:04 am

      As I wrote about that, I was certain one of my mouthier friends might have something to say….maybe by October, I will be able to take you up on the roller derby!

  3. Cindy Foster said,

    July 31, 2010 at 9:10 am

    Yes – such an imagination. We love it and we love you! So glad to hear you are seeing such noticeable results.


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